On behalf of our board, welcome. Whether you’re an individual living with Prader-Willi
Syndrome, a parent, a sibling, a caregiver, a clinician, an educator, or simply someone who
wants to learn more — we’re so glad you found us.

This is a brand new space for an organization with a long-standing purpose. We exist because
families like ours know firsthand how isolating a PWS diagnosis can feel, and how
transformative it is to find people who truly understand.
That is why our guiding principle is connection. It drives our mission, and clarifies our vision.

Our priority is to connect people to each other, to resources, to information, to providers, and to
policy. Every event we host and every resource we share is designed to strengthen those
connections across our Minnesota community. Connection is at the center of everything we do.

An organization like this is truly yours and mine; it is only as strong as the people who power it.
Chances are, if you find yourself checking out this website, you are likely already familiar with how much a life with PWS demands of a family.

As a member of our PWS community myself, I understand that taking on one more thing, however small, can be too much. I do not ask of your time and energy lightly, and I recognize that for some of you, now is not the time to take on any more. With that said, if you can, I’d like you to consider what role you could play in creating or supporting connections in the PWS community. From sharing an event post on social media to putting us in contact with your friend who is willing to help us create a fundraising event, every single effort is meaningful, appreciated, and amplifies our ability to serve the Minnesota PWS community. The bottom line is that if we want PWSA-MN to do more, to be more, to be the shining star in the north that it can be, we need more people. If you (or someone you know) could lend a hand with fundraising, event planning, social media, or camp, we would love to hear from you. You don't need a personal connection to PWS to make a meaningful difference here. You just need to care.

If this resonates, please reach out. Introduce yourself. Tell us what you're good at, or what you're curious about. Every conversation is a starting point. Our contact form and calls for volunteers are a great place to start, or you can email me directly at: contact@pwsamn.org

Thank you for being here at the very beginning of something important. We can't wait to build this with you.

With gratitude,

Jennifer Andrews

President, Board of Directors
Prader-Willi Syndrome Association of Minnesota